Two year old Gavin, was born with Leber’s Congenital Amaurosis (LCA). There is no cure, but we are helping to try to change that. This blog was started within 48 hours of receiving his diagnosis, at 4 months of age. It documents the triumphs, struggles and joys of raising a child, who happens to be blind.
Saturday, February 14, 2009
Almost halfway there!
We have already raised $520.00 in less than a week (4 days to be exact) for Gavin's Groupies!
I am so moved by the compassion and support from family, friends, people I have not seen in years, people who have not had the pleasure of meeting my son, and complete strangers. This has been nothing short of a roller-coaster ride the past 2 weeks.
There are so many clinical trials for vision loss happening right now, but there are even more which are waiting for funding. To know that by the kind hearted people who have donated, you are part of the cause for getting us closer to the research that will provide preventions, treatments and cures for people affected by the full spectrum of retinal diseases.
Even if during Gavin's lifetime, we don't have a cure or treatment for him - I am so honored to be a part of this. I will continue to push forward for my son, my grandchildren, and all those in my family in generations to come. Since this is a hereditary gene somewhere in our family, the chance of this occuring again, is quite possible.
Thank you again, to everybody for your support and compassion and above all, interest. I possibly have a few other fundraising ideas for Gavin's Groupies. I will share later, once I have some concreate plans. Also, for those of you, who would like to just bring a donation to the walk, we will have a donation can. Drop in a dollar, whatever you like. Every dollar helps!
A very special thank you, to those who have donated. A very very special thank you to those who are helping me drive this fundraiser by asking your family and friends, people I don't even know. I am truly moved. I am seeing the donations come in, and the names associated to many of those donations do not ring a bell. I am humbled by the big hearts and generosity, especially during these rough economic times. Please hug these people for me!
Thank you again, and just take a stroll with us on June 7th at Cal State Fullerton campus! Gavin would love to meet you, and I would love to hug everyone who is supporting us during this difficult, but inspiring time.
PS. I want to exceed my goal, just so you know. ;) We will.
Subscribe to:
Post Comments (Atom)
Jen, the please hug people for you, Ive been doing that and they've all told me that if they knew it included a hug from me they wouldn't have donated :)
ReplyDelete