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Monday, June 14, 2010

This and that...

1) We are still waiting on the results from Gavin's tests from the Carver Lab. I checked the status, and looks as though things are moving, but no answer just yet. And so we wait.

2) We leave for Philadelphia in about a month. We will be leaving the kids behind. We decided long ago it would be best to leave them, for a number of reasons. One of those is NOT that I wanted to. Which leads to point 3.

3) We escaped over the weekend, just Troy, Landon and I. I was not happy about leaving Gavin, but Troy convinced me and he was right. Mr. Gavin is a handful, not that he is a difficult child, but this phase is difficult and demands all your energy. As much as I missed him, I have to say, it was exactly what I needed. Landon got mom and dad all to himself, I got to relax by the pool (if even in the freezing cold and for just an hour). We will be going back soon. We are back to reality and the eye police is back in full force. LOL

4) MUSIC, MUSIC, MUSIC. The words repeated in this house, day and night. All Gavin wants is his music (yes, I know I have talked about this before). As he gets older, the need gets greater, his singing becomes more in tune. Family members who don't see him all the time, are starting to see what I am talking about. It's pretty incredible. Speaking of which, a Professor of Music at Roehampton University in London, England is conducting a study on music and children with LCA. It was pretty weird answering the questionnaire he sent to me for Gavin, because I really got to see how often and through daily activities that music is such a big part of our lives. All the info was submitted, and I'm looking forward in time reading about his findings in this study.

4.) The Gavin R. Stevens Foundation will now be consuming my time. I'd like to say I'm good at multi-tasking, but when it comes to projects, I have to focus on one at a time. In my mind it saves my sanity if I am able to compartmentalize projects. Now that VisionWalk is over, the GRSF is on it's way. We are working with my cousin on getting corporate sponsorships (since he is a champ at it), we are solidifying our next event for October (fingers crossed it goes through), I am working on the shell of the website, and the content. We have had so many people who want to help, and I am TRULY blessed to have the circle of people who offer their help. I am not one to ask, even when I need to. But so many people who are close to us are thinking of different ways to help, and I am so inspired by all of the ideas. :)

5.) In other news, Landon is no longer a Kindergartner. *cry* Where he is going to school next year is still up in the air. He may continue at the same school, but there are some things I am not happy about, and he is on a waiting list for another. The thought of homeschooling, is really not far from my mind. But THAT is for another discussion and post.

6) SUMMER! It's not my favorite. Ok, I enjoy being able to have late night BBQ's, and all the fun activities that summer brings, but the roasting temperatures are NOT my favorite. I'm not much of a beach person, I enjoy it, don't get me wrong -- but I would rather be in the mountains near trees and a running creek or in some wide open greenery (need to move to the country). I know, weird! But, this summer I am excited. Gavin is at a good age to have him explore new things this summer, and for that I am looking forward to summer. (Shh... really, I enjoy summer because it's just that much closer to Fall). Kidding? Not.

7) Sorry this isn't much of an in depth post. I had a few small Gavin things, but nothing too much to elaborate. On a side note, did you see the new building dedicated at Children's Hospital in Philadelphia? WOW!!! It's these new, updated facilities that will hold the cure for so many children in the way of gene therapy. There are other departments within the building, and I couldn't be happier knowing how much centralized research will take place to help so many children with many different diseases.


  1. We are looking forward to meeting you in a month. We are coming without the children this time too.

    I can't wait to hear more about the foundation. What a fantastic undertaking!

    You can always come to Connecticut to get your fill of green and streams. Anytime!

  2. Congratulations Stevens Family!! It is nice to hear that everything is going GREAT.

    P.S. Landon Miguel says Hi


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